1 00:00:02,870 --> 00:00:08,300 Hello and welcome to this podcast on the messy reality of qualitative health research. 2 00:00:08,300 --> 00:00:12,410 My name is Dr. Anne-Marie Boylen and I'm the director of the Postgraduate Certificate 3 00:00:12,410 --> 00:00:16,520 in Qualitative Health Research Methods here at the University of Oxford. 4 00:00:16,520 --> 00:00:21,170 Today, I'm joined by Dr Laura Griffith, a former academic who now works in public health. 5 00:00:21,170 --> 00:00:25,910 Hello, Laura Alé, welcome. It's good to have you. 6 00:00:25,910 --> 00:00:32,210 Thanks for having me. Laura and I have both worked in health research for quite a long time now. 7 00:00:32,210 --> 00:00:38,180 We've both done research about people's experiences of health and illness conditions. That's published on Health Toksvig. 8 00:00:38,180 --> 00:00:43,400 Between us, we've studied mental health, motherhood, disability, smoking cessation, 9 00:00:43,400 --> 00:00:48,590 research processes and patient feedback leading to quite varied curves. 10 00:00:48,590 --> 00:00:54,740 So, Laura, you've an interesting history with qualitative research. How did you originally come to it? 11 00:00:54,740 --> 00:01:01,220 So I actually came to qualitative research at PhD level, so I had to sort of swapping from an, 12 00:01:01,220 --> 00:01:08,240 I mean, critical theory and then coming into to in anthropology. 13 00:01:08,240 --> 00:01:17,360 So I was doing that and I thought I've had to do a lot of catching up and in terms of essential research and social research methodology, 14 00:01:17,360 --> 00:01:22,850 and I did my study about the experiences of Bangladeshi mothers in the east end 15 00:01:22,850 --> 00:01:29,450 of London say that required a period of language learning in Bangladesh itself, 16 00:01:29,450 --> 00:01:38,510 and that was also useful sort of circumstantially. And then a period of about eight years fieldwork in London and writing that up. 17 00:01:38,510 --> 00:01:47,720 And the research itself was initially going to be much more narrowly focussed on the experiences of postnatal depression amongst Bangladeshi mothers. 18 00:01:47,720 --> 00:01:50,150 But it expanded from that question. 19 00:01:50,150 --> 00:02:01,550 I think it to look at how the mental health and wellbeing of Bangladeshi mothers was conceived of by the women themselves who are going through 20 00:02:01,550 --> 00:02:09,950 childbirth and post-natal period by health visitors and health programmes that were working with them by the Strategic Health Authority, 21 00:02:09,950 --> 00:02:19,220 as well as in the literature. So it sort of took place natal depression as a focus and then went into lots of different areas, 22 00:02:19,220 --> 00:02:25,100 people and organisations, to see how that was interpreted. So that was my sort of first brush. 23 00:02:25,100 --> 00:02:30,560 And I knew that I came into fieldwork and very sort of quickly and early. 24 00:02:30,560 --> 00:02:38,840 And it was a bit of a trial by fire, I think. How did you come into what was your first experience of qualitative research? 25 00:02:38,840 --> 00:02:45,260 Well, it was similar to yours, actually. So I started my PhD after a period of time being a music teacher. 26 00:02:45,260 --> 00:02:49,880 So doing something completely unrelated. And my background is in psychology. 27 00:02:49,880 --> 00:02:58,910 So I started this PhD in social psychology that involved developing a quantitative measure of social exclusion in children with acquired brain injury. 28 00:02:58,910 --> 00:03:03,410 But as soon as I started, it became apparent that there was no real justification for that. 29 00:03:03,410 --> 00:03:07,940 There had been no qualitative research done really to sort of explain why that was 30 00:03:07,940 --> 00:03:12,770 needed or even to to explore social exclusion in children with brain injuries. 31 00:03:12,770 --> 00:03:20,990 So I decided to turn the thing on its head and do a completely qualitative piece of work that was about social inclusion, actually, 32 00:03:20,990 --> 00:03:28,790 because we decided that starting from a more positive point of view would be helpful for the people that were involved in the research 33 00:03:28,790 --> 00:03:37,350 and started to use the phenomenological approach to interview children with brain injuries and their mothers about their experiences. 34 00:03:37,350 --> 00:03:44,420 Unlike you, it was a complete baptism of fire and it was something that I really valued and wanted to do well. 35 00:03:44,420 --> 00:03:54,110 And I think that sort of being able to be flexible about the research that you're doing was something that was really, 36 00:03:54,110 --> 00:03:57,560 really important to me as one of the things that I valued in qualitative research. 37 00:03:57,560 --> 00:04:02,630 So being able to determine the course of things wasn't going in the way that I could do. 38 00:04:02,630 --> 00:04:07,870 And changing the focus of it was really, really helpful. 39 00:04:07,870 --> 00:04:13,790 And I think where we're already getting into some of these messy realities of a qualitative research, 40 00:04:13,790 --> 00:04:17,330 what are the things you said there was about having to change your research question? 41 00:04:17,330 --> 00:04:21,440 Sort of similar to what I did as you went along. 42 00:04:21,440 --> 00:04:25,280 And I think that's one of the kind of messy realities of qualitative research, isn't it, 43 00:04:25,280 --> 00:04:31,300 that you think you're doing one thing, but you get out into the field and find out that you're actually doing another? 44 00:04:31,300 --> 00:04:38,770 That's exactly right, and I think how you phrase and focus the research question really very often, for example, 45 00:04:38,770 --> 00:04:45,670 and postnatal depression is the concept itself wasn't known amongst a lot of first 46 00:04:45,670 --> 00:04:51,580 generation by whether he might or was certainly wasn't related to on a personal level. 47 00:04:51,580 --> 00:04:55,600 But I was interested then in a lot of areas around that. 48 00:04:55,600 --> 00:05:01,240 So people's ideas of what, say, postnatal depression was vary greatly from health visitors to, 49 00:05:01,240 --> 00:05:07,030 you know, sort of health policy versions of it and so on. Similarily and attitudes to breastfeeding. 50 00:05:07,030 --> 00:05:12,220 There was a low rates of exclusive breastfeeding amongst the Bangladeshi population, 51 00:05:12,220 --> 00:05:18,340 but a higher rate of mixed feeding at six months than the UK mean. 52 00:05:18,340 --> 00:05:23,560 And there were similar sorts of suppositions about what the Bangladeshi population 53 00:05:23,560 --> 00:05:28,180 was like by various people who worked in the health services and so on. 54 00:05:28,180 --> 00:05:32,260 And that was therefore relating to this complex reality. 55 00:05:32,260 --> 00:05:38,020 And I think there's a danger, particularly saying that anthropology of producing in this sort of a cultural fashion, 56 00:05:38,020 --> 00:05:42,220 that all your behaviour is based on culture with a capital C, 57 00:05:42,220 --> 00:05:47,440 rather than just this messy reality of where breastfeeding services are located, 58 00:05:47,440 --> 00:05:54,340 your living arrangements, you know, the practicalities of breastfeeding work on those sorts of things. 59 00:05:54,340 --> 00:06:01,450 And the initial very focussed question I was on had a series of very connected issues around it, 60 00:06:01,450 --> 00:06:04,990 which I find it much more useful then to go off and investigate. 61 00:06:04,990 --> 00:06:09,680 And so it was much more helpful to me to be doing an ethnographic approach and observation, 62 00:06:09,680 --> 00:06:19,840 one that could then include connected observations that would help me provide the context for my initial 40 focussed research question. 63 00:06:19,840 --> 00:06:27,100 Did you have that? Did you have any problems? I think changing the methodology of your research as you went along? 64 00:06:27,100 --> 00:06:34,480 Yeah, I did. I think one of the things that I initially had to do was convince my supervisors that it was a good idea. 65 00:06:34,480 --> 00:06:39,880 So I had to do the groundwork for the study that I was never going to do to prove that it couldn't 66 00:06:39,880 --> 00:06:45,490 be done and or not that it couldn't be done that but that wasn't the time for it to be done. 67 00:06:45,490 --> 00:06:50,200 There needed to be other work done in advance of it. So I had to do that. 68 00:06:50,200 --> 00:06:56,140 And the other thing was that I had to reconceptualized how I thought about research as well, 69 00:06:56,140 --> 00:07:00,550 because at that stage I was approaching things from quite a positive stance, 70 00:07:00,550 --> 00:07:06,850 you know, and I was always going to be doing some interviews with children to develop this measure. 71 00:07:06,850 --> 00:07:12,640 But they weren't going to be kind of in depth phenomenological interviews, which is what I ended up doing. 72 00:07:12,640 --> 00:07:21,970 So I had to change my entire view of how things are in the world and basically what constitutes knowledge and what can we know, 73 00:07:21,970 --> 00:07:31,210 you know, and how can we go about knowing it? And I think the other thing was that sort of coming from a psychological point of view for 74 00:07:31,210 --> 00:07:36,160 quantitative research is definitely kind of more prioritised than qualitative research. 75 00:07:36,160 --> 00:07:44,710 It certainly was back then, and I think it's better now. And I was surrounded by people who were doing much more quantitative things and, you know, 76 00:07:44,710 --> 00:07:49,210 sort of felt like I was stepping outside of my discipline a little bit in what I was doing. 77 00:07:49,210 --> 00:07:54,280 But I think the the value of what I did was huge. 78 00:07:54,280 --> 00:08:01,780 Both in terms of of sort of the what I was studying, but also what I learnt as a qualitative researcher, 79 00:08:01,780 --> 00:08:05,050 I think there's if you want to learn to be a good interviewer, 80 00:08:05,050 --> 00:08:12,430 you should start by interviewing children because they do not conform to the traditional. 81 00:08:12,430 --> 00:08:16,090 You know, I sit across from you, I ask questions and you answer them. 82 00:08:16,090 --> 00:08:23,230 And they definitely sort of made me change how I viewed interviewing for the positive, you know, definitely. 83 00:08:23,230 --> 00:08:28,810 Definitely for the better. I mean, I think the same for me, really. 84 00:08:28,810 --> 00:08:32,890 I think a lot of the situations that came up when I was doing ethnography, for example, 85 00:08:32,890 --> 00:08:40,330 I was visiting the family in London of a family I knew in Bangladesh, and they knew that I was doing my research and so on. 86 00:08:40,330 --> 00:08:45,940 And then there was, you know, daughter in law there, etc. and they said, oh, you know, she'll tell you about, you know, X, Y, Z. 87 00:08:45,940 --> 00:08:49,510 And I was thinking, you know, oh, gosh, I've been through an ethics committee. 88 00:08:49,510 --> 00:08:58,840 I've got Potts's, but I haven't got any of my work. But people were just telling me about their experiences and my worry. 89 00:08:58,840 --> 00:09:03,730 I think as a young, inexperienced researcher, he would only just you know, 90 00:09:03,730 --> 00:09:12,220 I didn't have much institutional support exports, say, from applying to an NHS Research Ethics Committee as it was then. 91 00:09:12,220 --> 00:09:18,490 And and if there was a worry that, you know, you weren't doing this properly, that, you know, 92 00:09:18,490 --> 00:09:22,780 there was this very strict process that you had to adhere to and people were sort of just 93 00:09:22,780 --> 00:09:28,690 telling you information and not paying attention to the guidelines that you have written down. 94 00:09:28,690 --> 00:09:34,690 And so if you got some information or you experienced something or you will wear something 95 00:09:34,690 --> 00:09:40,090 that you didn't necessarily have the ethical set out to record in your research, 96 00:09:40,090 --> 00:09:42,440 what do you do with that information? 97 00:09:42,440 --> 00:09:49,990 And so I think that in in one sense, it's very useful coming at qualitative research first from an ethnographic point, 98 00:09:49,990 --> 00:09:57,910 because there were more flexible boundaries around that and there were different ways of including that information. 99 00:09:57,910 --> 00:10:03,220 So I couldn't include that information, for example, in an interview format, even though I did interview someone. 100 00:10:03,220 --> 00:10:08,140 But I could include it as context. And I think that was really helpful for me. 101 00:10:08,140 --> 00:10:14,080 But suddenly being confronted with doing an interview in somebody's home when you didn't think you were doing an interview, 102 00:10:14,080 --> 00:10:16,600 etc., those sorts of messy realities, 103 00:10:16,600 --> 00:10:26,920 I think a very common both by doing, you know, I think qualitative interviews in a formal sense suit some populations more than others and saved. 104 00:10:26,920 --> 00:10:34,120 Likewise, you're saying if you're interviewing children sitting down face to face for an hour who may not be the most appropriate methodology. 105 00:10:34,120 --> 00:10:43,360 Likewise, if you're doing community work etc, then you a level of sort of informal interaction is really helpful. 106 00:10:43,360 --> 00:10:48,680 But there are ethical considerations around both of those. Yeah, absolutely. 107 00:10:48,680 --> 00:10:51,880 And I think if you've touched upon something there as well, 108 00:10:51,880 --> 00:11:01,420 which is about how you build rapport with people and how you sort of become a good qualitative researcher when you're in the field, 109 00:11:01,420 --> 00:11:08,200 because one of the things that we say when we're sort of filling in ethics applications or things like that is about building rapport. 110 00:11:08,200 --> 00:11:12,100 And it's certainly something that's seen as crucial to developing relationships with 111 00:11:12,100 --> 00:11:17,080 participants so that they will sort of give honest and fulsome accounts of their experiences. 112 00:11:17,080 --> 00:11:24,880 But it's not it's not something that's that you follow a formula to do is that, you know, there's there's simple ways of doing it. 113 00:11:24,880 --> 00:11:30,910 What are your thoughts on building rapport? I think early on, certainly when I was doing that fieldwork school was built, 114 00:11:30,910 --> 00:11:36,280 say, by the fact that I could speak Feleti and that was relatively unusual. 115 00:11:36,280 --> 00:11:46,220 And therefore that was positively viewed by a number of participants that I was young and inexperienced and that I was asking about motherhood. 116 00:11:46,220 --> 00:11:50,140 That wasn't a mother at that stage. And so people were eager to tell me. 117 00:11:50,140 --> 00:11:58,930 And as you know, from an older person, sometimes at least a more experienced presence to an experienced person, what it was like. 118 00:11:58,930 --> 00:12:04,510 So I think rapport in that situation was built partly on my helplessness, 119 00:12:04,510 --> 00:12:11,050 like if I am a psychiatrist, they were keen to help a young researcher with their work. 120 00:12:11,050 --> 00:12:17,540 And sometimes I felt a bit disingenuous because I think they were thinking that they were just departing, 121 00:12:17,540 --> 00:12:20,980 you know, sort of instructing me about the way things were, 122 00:12:20,980 --> 00:12:26,710 whereas I was actually also interrogating that information and thinking about your thinking about the same, 123 00:12:26,710 --> 00:12:34,810 you know, concepts, post-natal depression from all these multiple angles, etc. So I think in that instance, the report was built by my inexperience. 124 00:12:34,810 --> 00:12:41,830 And then later on in my career, I think the rapport was more built by my knowledge of a particular situation. 125 00:12:41,830 --> 00:12:48,610 So, for example, the research I did with the Health Experiences Research Group is about experiences of psychosis. 126 00:12:48,610 --> 00:12:53,940 And by that time I had worked quite a long time in and with people who'd been diagnosed to. 127 00:12:53,940 --> 00:13:00,480 The acute mental health difficulties and the rapport was built by the facts that 128 00:13:00,480 --> 00:13:04,920 say talking about voices or psychotic experiences wasn't the usual thing to do, 129 00:13:04,920 --> 00:13:10,320 but the fact that I knew about it had talked to people about it for years and so on. 130 00:13:10,320 --> 00:13:15,100 I think some of it was built there because of the lack of information. 131 00:13:15,100 --> 00:13:19,800 You didn't have to explain for the first time what it was like to hear a voice. 132 00:13:19,800 --> 00:13:26,760 And I think that some of that was destigmatizing. So and I think some of that helps as well. 133 00:13:26,760 --> 00:13:35,250 And then perhaps later on, I think it was built by the fact that I could perhaps influence a policy system, 134 00:13:35,250 --> 00:13:41,880 something that that might be helpful towards them. So it was a knowledge exchange, I think, in that sense. 135 00:13:41,880 --> 00:13:47,100 So I think it really dramatically has varied during the course of my career. 136 00:13:47,100 --> 00:13:57,180 What about you? Do you think it's similar in that sense as it got in this sort of linear trajectory where you seemingly helpless? 137 00:13:57,180 --> 00:14:05,970 I certainly felt differently about it when I started. You know, and the the very first piece of research I did was, I mean, 138 00:14:05,970 --> 00:14:15,030 outside of sort of undergraduate projects was an interview study with people about their perceptions of brain injury. 139 00:14:15,030 --> 00:14:19,470 So, you know, what did they think that people were with brain injury were like? 140 00:14:19,470 --> 00:14:27,120 And that was really interesting because I kind of I sort of approached it as this quite structured thing. 141 00:14:27,120 --> 00:14:31,500 So I was there to ask questions and they were there to answer them. The questions were, well, predefined. 142 00:14:31,500 --> 00:14:39,800 I wasn't very good with flexibility and the iterative approach that I have later kind of come to develop and see the importance of. 143 00:14:39,800 --> 00:14:45,300 And I think that the rapport that I built in that study certainly left a lot to be desired. 144 00:14:45,300 --> 00:14:52,230 There's probably I probably could have done a lot better. And then when it came to doing my PhD and working with children, 145 00:14:52,230 --> 00:14:59,700 it's very difficult to build rapport with children as an adult because, you know, adults are are in a position of authority. 146 00:14:59,700 --> 00:15:03,900 They're used to their parents telling them what to do, their teachers telling them what to do. 147 00:15:03,900 --> 00:15:12,520 And for children with brain injuries, there's a whole raft of services involved, charities, occupational therapists, physiotherapists, the whole lot. 148 00:15:12,520 --> 00:15:16,320 So, you know, here was me, yet another person who was in authority, 149 00:15:16,320 --> 00:15:22,230 even though I knew nothing about the experience and really had no authority to speak of. 150 00:15:22,230 --> 00:15:28,170 But I drew on my experience from teaching and sort of rolled up my sleeves and got on with it. 151 00:15:28,170 --> 00:15:33,360 I spent time getting to know the children and coming to see them a couple of times before I interviewed them. 152 00:15:33,360 --> 00:15:37,080 And then I would literally get on the floor with them, play games with them, you know, 153 00:15:37,080 --> 00:15:43,620 and that's not the sort of thing you do with adults or it's not as overt in terms of what you do with adults. 154 00:15:43,620 --> 00:15:48,480 But I think the other thing was you you said there the part of the rapport building 155 00:15:48,480 --> 00:15:52,980 was the impression that you could make change at a policy level or whatever. 156 00:15:52,980 --> 00:15:58,860 And I know that I certainly interviewed people before who have thought that I have more authority than I do. 157 00:15:58,860 --> 00:16:04,830 And that's a tricky one because I never wanted to lead them to believe I was anything more than I was. 158 00:16:04,830 --> 00:16:11,100 So I think part of the rapport building there was having honest conversations about what I couldn't do, you know, 159 00:16:11,100 --> 00:16:17,610 just being frank and honest about the limits of the research and about the limits of how it could be disseminated 160 00:16:17,610 --> 00:16:24,270 and focussing on what I was intending to do with that rather than what they hoped I was intending to do with it. 161 00:16:24,270 --> 00:16:30,000 But having a conversation around how I wish I could do more, I think as a researcher, 162 00:16:30,000 --> 00:16:34,080 sometimes you feel helpless, don't you, about what you can and can't do? 163 00:16:34,080 --> 00:16:42,150 Is that something you identify with? Certainly. I think I felt more helpless as I've gone along in that aspect. 164 00:16:42,150 --> 00:16:49,020 And I think early on I thought I genuinely thought and perhaps arrogantly, that, you know, 165 00:16:49,020 --> 00:16:56,970 if I knew this situation was happening, for example, you needed more money for therapeutic services and mental health. 166 00:16:56,970 --> 00:17:04,880 Now, this is hardly no rocket science. Most people know that you need more talking therapy, more therapy, etc. 167 00:17:04,880 --> 00:17:11,400 And I think I thought if I just told people that at the end of my research, then it would happen. 168 00:17:11,400 --> 00:17:22,080 And I think as I've gone on and hopefully got less stupid about that and that realising the more interesting question is, 169 00:17:22,080 --> 00:17:26,560 well, if everybody knows that, what's keeping things the same, why? 170 00:17:26,560 --> 00:17:32,580 Why is change not happening? So I think the the mistake in my research is saying, therefore, we must need change. 171 00:17:32,580 --> 00:17:40,210 And describing and I think therefore it is particularly and I think I think research as a philosophy about 172 00:17:40,210 --> 00:17:50,000 creating the sort of static reality rather than one which I am now much more interested in interrogating change. 173 00:17:50,000 --> 00:17:53,900 So looking at the policy rollouts and see what works. 174 00:17:53,900 --> 00:17:59,270 And what doesn't work within that and being helpful partner in that rollout, 175 00:17:59,270 --> 00:18:03,830 for example, one of my later pieces of research, which was own consultancy, 176 00:18:03,830 --> 00:18:11,930 was about a project which was called Air Raid, which is now I'm going to have to remember that rapid assessment interface and discharge. 177 00:18:11,930 --> 00:18:16,610 And it was about picking people up and would come to any in crisis and a mental 178 00:18:16,610 --> 00:18:21,650 health crisis and getting much more effective intervention and support. 179 00:18:21,650 --> 00:18:29,990 Now, it was sold as a cost saving measure. So, you know, that's an expensive way for some people to enter the service and so on. 180 00:18:29,990 --> 00:18:35,750 And actually, when I spoke to clinicians and people, it designed the service and rolled out in different areas. 181 00:18:35,750 --> 00:18:41,810 And that was going to be different in an inner city area than it was in, say, Herefordshire and so on. 182 00:18:41,810 --> 00:18:47,960 Actually, a lot of the interventions that had come around that were helpful in lots of different ways. 183 00:18:47,960 --> 00:18:56,420 For example, they were much more helpful in in a generalist elderly care would and much less skilled people, 184 00:18:56,420 --> 00:19:02,780 much more in talking about mental health and in a general level. So it wasn't it was aimed as a sort of specialist intervention, 185 00:19:02,780 --> 00:19:06,990 and it actually helped much more general conversations about how to approach mental health. 186 00:19:06,990 --> 00:19:10,460 And I think that was really interesting just to reflect that back. 187 00:19:10,460 --> 00:19:17,210 So it was looking at something in motion, a policy rollout in motion, rather than just saying at the beginning, well, 188 00:19:17,210 --> 00:19:23,600 it's difficulty when people present any with a mental health crisis because everybody is very apparent 189 00:19:23,600 --> 00:19:28,430 to the people who are presenting any and it's very apparent to the clinicians who work with them. 190 00:19:28,430 --> 00:19:33,890 So I think that that's the bit that's changed and sort of messy reality is trying to 191 00:19:33,890 --> 00:19:40,070 look at something in change rather than trying to falsely describe a static reality. 192 00:19:40,070 --> 00:19:48,910 And tell me this this this sort of notion of trying to improve things with research on the limits stuff we have. 193 00:19:48,910 --> 00:19:58,340 And you know what you've just described there. Do you think there's any benefit to you being a qualitative researcher and looking in on that problem? 194 00:19:58,340 --> 00:20:04,610 I think, again, the benefit of the flexibility in the approach. 195 00:20:04,610 --> 00:20:11,390 So I think core and so anthropological approaches, which is essentially what I was trained in, what I was looking at, 196 00:20:11,390 --> 00:20:20,030 when and if I showed you sort of from de familiarisation what people said they did and what they actually did and having that flexibility. 197 00:20:20,030 --> 00:20:25,190 And that's not to catch people out, but having to look at the complexity. 198 00:20:25,190 --> 00:20:31,400 And as I said in my last example, sometimes you you can capture something which isn't captured elsewhere. 199 00:20:31,400 --> 00:20:39,080 So, for example, in a lot of the public health outcomes framework captures a version of reality of health, 200 00:20:39,080 --> 00:20:48,950 improving indicators which do genuinely matter. But a lot of policies might be implemented or health improvement measures which are of benefit. 201 00:20:48,950 --> 00:20:51,560 But that benefit might be complex. 202 00:20:51,560 --> 00:21:01,400 So alongside that then and you get it aimed at population better, you get the ways of working captured more accurately. 203 00:21:01,400 --> 00:21:08,060 So if it's difficult or not for clinicians and support workers and so on to to deliver and 204 00:21:08,060 --> 00:21:14,510 I think you just get a much fuller version of what it is and isn't doing as a policy. 205 00:21:14,510 --> 00:21:18,410 So I think it matters who commissions the research, 206 00:21:18,410 --> 00:21:28,370 who do the research with and where the research and ends up in terms of and its methodology, its usefulness and so on. 207 00:21:28,370 --> 00:21:34,460 And I always find, I think that you start off wanting to do everything at the beginning of research project, 208 00:21:34,460 --> 00:21:44,930 you know, produce an academic output, influence policy. You may make things be useful to patients in the public, but we ran out of time somehow. 209 00:21:44,930 --> 00:21:48,320 You ran out of money. And who's commissioned the research? 210 00:21:48,320 --> 00:21:55,400 And the way it works really makes a difference to both of the key outputs from your research and say, 211 00:21:55,400 --> 00:22:02,250 do you have any examples of who you've worked with making a difference to what you produce in the way you work? 212 00:22:02,250 --> 00:22:12,470 And that's a good question. I did some research about patient and public involvement that I think probably comes closest to getting to this issue. 213 00:22:12,470 --> 00:22:18,020 And so patient and public involvement is a relatively recent thing. 214 00:22:18,020 --> 00:22:23,930 Quotative researchers have been doing it for decades in the form of participatory action research. 215 00:22:23,930 --> 00:22:28,700 And although it's not quite the same thing, they've been doing, that kind of version of it for a long time. 216 00:22:28,700 --> 00:22:36,560 And then there was a move within health research to involve patients and members of the public in health research as experts in their own experience, 217 00:22:36,560 --> 00:22:42,890 to sort of try and democratise research and to make it something that's a bit more palatable for people to take part in. 218 00:22:42,890 --> 00:22:46,070 And I suppose to humanise research, really. 219 00:22:46,070 --> 00:22:53,570 And along with Louise Lowcock, I worked on a project where I interviewed patients and members of the public who worked in health research and. 220 00:22:53,570 --> 00:22:57,880 They also interviewed researchers who involved patients and members of the public, 221 00:22:57,880 --> 00:23:04,330 and that was quite interesting because I, as a researcher interviewing other researchers was an experience, 222 00:23:04,330 --> 00:23:09,430 you know, and there were some who were more junior than I was some who were maybe about the 223 00:23:09,430 --> 00:23:13,870 same career stage and then others who were much more senior and experienced. 224 00:23:13,870 --> 00:23:20,440 And I think the thing was I was speaking to them about something that had been imposed on the way they work. 225 00:23:20,440 --> 00:23:25,150 And for some that was really positive and they could easily see the benefits of it. 226 00:23:25,150 --> 00:23:31,390 And for others it wasn't as positive. And it was something that made work a little bit more difficult. 227 00:23:31,390 --> 00:23:39,010 And I think that for them to sort of say that in a professional setting, in something that was going to be published in professional journals, 228 00:23:39,010 --> 00:23:46,570 and especially with the potential for being identified in qualitative research, it was it was quite a big thing. 229 00:23:46,570 --> 00:23:55,270 And and I find that quite challenging to be able to reconcile how I felt about patient and public involvement and how they had engaged with it, 230 00:23:55,270 --> 00:23:58,240 and then to speak to people who maybe had differing views to me, 231 00:23:58,240 --> 00:24:03,870 who ultimately always asked me what I thought as well, you know, so I sort of had to navigate that. 232 00:24:03,870 --> 00:24:10,240 So if somebody was very smart and I was quite pro and then it was something that I felt, you know, 233 00:24:10,240 --> 00:24:18,250 I had to have a quick think about how will this affect the rapport if I divulge how I feel about what they've been telling me. 234 00:24:18,250 --> 00:24:22,120 And so, yeah, that was quite interesting. And, you know, 235 00:24:22,120 --> 00:24:28,360 ultimately that research showed that patient and public involvement was something that was often 236 00:24:28,360 --> 00:24:33,520 done more by qualitative researchers and multidisciplinary teams and more often than not, 237 00:24:33,520 --> 00:24:43,390 by women. I thought that was quite interesting because the narrative around it and, you know, for women and for qualitative research, 238 00:24:43,390 --> 00:24:49,840 but it's back to those old tropes about how we as women and qualitative researchers can more readily talk to people, 239 00:24:49,840 --> 00:24:55,020 which I think is another one of those kind of complexities that we face in our research. 240 00:24:55,020 --> 00:25:05,530 And but, yeah, I think that was in terms of sort of having to negotiate who the audience was for what I was writing when it came to the paper, 241 00:25:05,530 --> 00:25:11,500 but also the kind of the navigating the power dynamics between myself and the 242 00:25:11,500 --> 00:25:17,120 participants who were essentially the same as me was quite an interesting experience. 243 00:25:17,120 --> 00:25:22,510 It's very interesting. What are you picking up then, when you asked for your opinion about something? 244 00:25:22,510 --> 00:25:27,790 And I was thinking about sort of what feels inside and outside the research, 245 00:25:27,790 --> 00:25:32,470 and I think sometimes that's much more clear when you have an interview study before the interview, 246 00:25:32,470 --> 00:25:35,760 during the interview, you sometimes get to different accounts. 247 00:25:35,760 --> 00:25:42,250 And so ethnographic research can be more easily edited because you are yourself doing that. 248 00:25:42,250 --> 00:25:49,060 So you edit your field notes whether you might think, whether or not you edit the mistakes that you do in the field, you know, 249 00:25:49,060 --> 00:25:57,610 and looking at an ethnographic research, you know, people have had relationships with participants and so on, famously anthropological studies. 250 00:25:57,610 --> 00:26:01,210 And those have been astounding. And obviously you get a feel motivation. 251 00:26:01,210 --> 00:26:05,680 And this is the personal diary version in quite famous anthropological studies. 252 00:26:05,680 --> 00:26:11,290 But if you're kept if you're trying to look at something which isn't very easily spoken about, 253 00:26:11,290 --> 00:26:14,980 so, for example, MPI, generally, that's supposed to be a good idea. 254 00:26:14,980 --> 00:26:17,650 People are surprised and welcome with me and encourage it and so on. 255 00:26:17,650 --> 00:26:25,150 So I'm guessing that you get sometimes to different accounts of the official version of, yes, we should be doing it and encouraging it. 256 00:26:25,150 --> 00:26:30,660 This is it's quite time consuming and expensive and it's being imposed on me. 257 00:26:30,660 --> 00:26:37,150 And then I think with my research looking at ethnic inequality and the experiences of racism, 258 00:26:37,150 --> 00:26:42,010 I found hugely challenging to think about ways, ways of documenting that. 259 00:26:42,010 --> 00:26:48,190 And I think one of the first things I did was about ethnic inequalities in acute psychiatric services, 260 00:26:48,190 --> 00:26:54,160 and it was very difficult to produce the evidence that we will innocense knew was cheap, 261 00:26:54,160 --> 00:26:58,570 that there were huge inequalities in mental health services, 262 00:26:58,570 --> 00:27:05,500 but that was mainly looking at structural inequalities, and that's very hard to get from an individual account. 263 00:27:05,500 --> 00:27:12,880 So we had some accounts of somebody being abused for wearing hijab and so on like that. 264 00:27:12,880 --> 00:27:17,960 But those weren't the kind of individual instances that they were more likely to be on it. 265 00:27:17,960 --> 00:27:23,620 And a compulsory treatment regime is more likely to be rapidly tranquillised. 266 00:27:23,620 --> 00:27:28,370 And those sorts of things, which we knew from the figures, were much more likely to happen. 267 00:27:28,370 --> 00:27:34,000 And it was very, very difficult to get an individual accounts which recognised the structural inequality. 268 00:27:34,000 --> 00:27:38,350 And I found that enormously challenging. But in a more sort of straightforward sense, 269 00:27:38,350 --> 00:27:44,740 I think when I was doing interviews about people's experiences and carers of people who'd been through psychotic episodes, 270 00:27:44,740 --> 00:27:52,810 I remember very clearly interviewing a woman who was and an older white woman, which is about 70. 271 00:27:52,810 --> 00:27:59,840 And she was the. From the experiences of her husband being admitted to a psychiatric ward, and she was clearly saying in the interview, 272 00:27:59,840 --> 00:28:06,170 it was very difficult because, you know, we felt that we couldn't understand the doctors there and so on. 273 00:28:06,170 --> 00:28:12,710 And we we felt and very disenfranchised. And she is quite sort of long with formal language and so on. 274 00:28:12,710 --> 00:28:19,280 When we were making a cup of tea in the movie, she said that the problem was there are lots of black people in the wards there, 275 00:28:19,280 --> 00:28:24,380 that it was quite a terrifying experience and we couldn't understand the doctors because they were all Indian. 276 00:28:24,380 --> 00:28:28,610 And there's no way she would have told me that in the interview. 277 00:28:28,610 --> 00:28:30,830 Rapport worked in in a slightly different way. 278 00:28:30,830 --> 00:28:39,980 Then I think she was sort of envisaging a level of camaraderie and similarity with me that wasn't there. 279 00:28:39,980 --> 00:28:44,600 And so it was a really difficult position for me to think, you know, 280 00:28:44,600 --> 00:28:50,600 normally if that was a straightforward personal conversation, I would call out the racism immediately. 281 00:28:50,600 --> 00:28:54,420 But in order to then continue on in the interview, you know what? 282 00:28:54,420 --> 00:29:02,180 What do you do ethically? You know, and I think I was very much working at the time, so listening to people's experience and accepting that reality. 283 00:29:02,180 --> 00:29:08,500 But if their reality was something that I was actually therefore deeply uncomfortable with, what do you do? 284 00:29:08,500 --> 00:29:14,100 And I think that that is a question that's really hard to satisfy in that sense. 285 00:29:14,100 --> 00:29:20,810 Yeah, I'm nodding along furiously here because I recognise so much of this from my own work as well. 286 00:29:20,810 --> 00:29:23,420 But also, I don't know about you and I. 287 00:29:23,420 --> 00:29:31,760 I've sort of had sexist comments directed at me and other sort of anti Irish comments as well, which are quite interesting. 288 00:29:31,760 --> 00:29:40,210 And I think that's the thing that you said there about sort of just sort of being there to accept their version of reality. 289 00:29:40,210 --> 00:29:45,620 That's not a direct quote. But, you know, that's sort of your role as a researcher isn't to challenge, you know, 290 00:29:45,620 --> 00:29:52,100 so I find myself laughing along with these things quite often and then going away feeling like I wish I could have said something, 291 00:29:52,100 --> 00:30:01,130 which, of course, you can't. It's not what you're there for. And the other thing was that I can't think of any study I've done where a participant 292 00:30:01,130 --> 00:30:06,140 didn't give me some sort of confidential information outside of the recording, 293 00:30:06,140 --> 00:30:12,800 you know, and sometimes that me that would have made a big difference to the type of data or to the to the story. 294 00:30:12,800 --> 00:30:19,220 And at other times, it's sort of supplemented what they told me already, but was just maybe a juicier version of something. 295 00:30:19,220 --> 00:30:26,150 And and I always thought that that's really, really interesting. And it would be amazing to do a study on what kind of things? 296 00:30:26,150 --> 00:30:32,460 What are the types of things that people tell you when they don't think you're recording or when they don't want you to to record. 297 00:30:32,460 --> 00:30:36,050 And of course, one of the really messy aspects of what we do, 298 00:30:36,050 --> 00:30:42,830 and you already talked about this a little bit, is that you can't separate these things out of your brain. 299 00:30:42,830 --> 00:30:47,960 So what's data versus what you know about the experience from the charts? 300 00:30:47,960 --> 00:30:51,080 You know, while someone's making you a cup of coffee or, you know, 301 00:30:51,080 --> 00:30:57,380 you're sitting on their sofa and putting their cat and talking about their kids and then they reveal something else, you know? 302 00:30:57,380 --> 00:31:01,370 And it's quite an interesting tension, isn't it? 303 00:31:01,370 --> 00:31:07,970 Because you can't you can't separate that in the analysis, can you know? 304 00:31:07,970 --> 00:31:14,000 And also, I think what they know about you and I think that that varies much more. 305 00:31:14,000 --> 00:31:17,570 I think in an ethnography, they know a lot more about you. 306 00:31:17,570 --> 00:31:21,320 They have a continuous, possibly longitudinal relationship with you. 307 00:31:21,320 --> 00:31:28,880 That may be friendship as well as work. And I think in qualitative interview studies, it's a bit of both. 308 00:31:28,880 --> 00:31:31,610 They have a sort of relationship with you. You may be friends. 309 00:31:31,610 --> 00:31:39,140 You know, sometimes I have interviewed friends for studies or colleagues, but it's a sort of halfway house. 310 00:31:39,140 --> 00:31:41,570 And also I think there's a different relationship, 311 00:31:41,570 --> 00:31:47,930 I think kind of different as I've gone along to what you reveal about yourself and the questions that they ask, 312 00:31:47,930 --> 00:31:55,250 you say and, you know, being put in a sort of uncomfortable situation, what do I call out, racism or not commonly in mental health? 313 00:31:55,250 --> 00:32:00,260 First question I say I would ask you, have you ever experienced mental health difficulties yourself? 314 00:32:00,260 --> 00:32:03,410 And in ethnography, I would speak quite openly about mental health. 315 00:32:03,410 --> 00:32:09,230 And, you know, if it was a conversation that was just being recorded for me or and I was notetaking or something, 316 00:32:09,230 --> 00:32:16,310 I think that situation necessarily changes when it's being recorded on a database by your employer and so on. 317 00:32:16,310 --> 00:32:24,110 And you ask for all sorts of things, like I've been asked about mental health and drug use, I've been asked about criminal records, etc. 318 00:32:24,110 --> 00:32:30,950 And you think now I think I've come to the position, if it's a much more formal, 319 00:32:30,950 --> 00:32:34,640 you know, consented process in an interview that actually we are doing. 320 00:32:34,640 --> 00:32:38,070 And, you know, they've consented to the interview. You haven't. 321 00:32:38,070 --> 00:32:43,520 And so I have got more closed, at least in the sort of formal section of the interview. 322 00:32:43,520 --> 00:32:48,110 And I have put sort of clearer boundaries, I think, as as I have gone on. 323 00:32:48,110 --> 00:32:53,900 Have you ever had any of that kind of boundary disruption? Yeah, I absolutely have. 324 00:32:53,900 --> 00:32:59,240 And part of it was, you know, that the participants wanted to know that I was legitimate, 325 00:32:59,240 --> 00:33:07,190 so it wasn't just a case of I was some random person who had come in to steal their story and take it away and use it for my own benefit. 326 00:33:07,190 --> 00:33:17,240 And so I was often asked about what my experience with brain injury was, and that was also by recruiting organisations as well as participants. 327 00:33:17,240 --> 00:33:21,480 And I don't have personal experience of it, but I have family members who have experience of it. 328 00:33:21,480 --> 00:33:32,210 So I had that lived experience of knowing somebody and watching how they lived their day to day lives to be able to draw on and use this reassurance. 329 00:33:32,210 --> 00:33:38,870 But, you know, I haven't been asked anything as exciting as you about criminality or drug use. 330 00:33:38,870 --> 00:33:45,980 I have been asked about my marital status and and also if I could get somebody a job, which were interesting. 331 00:33:45,980 --> 00:33:54,140 I did not. But I did spend some time talking to them about how I had sort of progressed in my career, which is, 332 00:33:54,140 --> 00:34:00,080 again, one of those kind of messy things because I wasn't there as the careers adviser or anything else. 333 00:34:00,080 --> 00:34:08,600 But I think that's that's one of the things when you do research outside of a lab, you know, or work where it involves interaction between humans, 334 00:34:08,600 --> 00:34:14,060 you have to acknowledge your humanity and be able to sort of talk to people in in a 335 00:34:14,060 --> 00:34:18,500 way that convinces them that you are genuine and can understand their experience. 336 00:34:18,500 --> 00:34:25,760 But it is it's very interesting what you say about the the things that you feel you have to be bindery to in a professional sense. 337 00:34:25,760 --> 00:34:36,560 And I think that definitely more experience leads you to feel confident in what you're not sharing as well as what you feel you have to share. 338 00:34:36,560 --> 00:34:41,450 Because this kind of it's an interview mimics a conversation, doesn't it? 339 00:34:41,450 --> 00:34:42,650 So, you know, 340 00:34:42,650 --> 00:34:49,560 you sometimes feel like the participant is expecting you to turn around and say what your experiences of the thing you've just asked them. 341 00:34:49,560 --> 00:34:57,610 And of course, that's not how it's done, but. I can smell the irony of this principle. 342 00:34:57,610 --> 00:35:07,340 Well, that's going to be the key thing that I learnt when I was working at Oxford was how not to interrupt, she said, interrupting you. 343 00:35:07,340 --> 00:35:11,310 It was just how different the interview experience was. 344 00:35:11,310 --> 00:35:16,160 And to do a conversation experience and I think doing ethnography, 345 00:35:16,160 --> 00:35:21,620 I didn't have to think about that as much because they were conversations and I felt it was sort of more ethical. 346 00:35:21,620 --> 00:35:29,450 You know, if you are sort of coup participants in that sense that they knew about your life and you knew about them and so on. 347 00:35:29,450 --> 00:35:34,820 And that change, this is how it is, I say, by having a more professional interaction, 348 00:35:34,820 --> 00:35:43,700 but then also by learning this basic put to it's a very practical scale of genuinely listening, 349 00:35:43,700 --> 00:35:48,500 saying I have the experience when I first joined Oxford of people listening really, 350 00:35:48,500 --> 00:35:53,540 really intently to my interviews and then asking me questions about them. 351 00:35:53,540 --> 00:36:01,490 And I've had people listen to my interviews before. That was no problem, but it was all my friends equivalent of analysis of where I left spaces, 352 00:36:01,490 --> 00:36:08,060 whether I laughed or not, you know, those sorts of things. And I think it genuinely changed and why it's being so. 353 00:36:08,060 --> 00:36:13,160 I mean, sometimes my conversational style has an impact actually on how I even listen to my friends, 354 00:36:13,160 --> 00:36:18,590 because I realised that there was a time when I was sort of I was waiting to speak rather than 355 00:36:18,590 --> 00:36:24,650 listening and then changing my response and has all sorts of implications beyond research. 356 00:36:24,650 --> 00:36:29,940 But it was that really close listening to your interview technique, that makes a difference. 357 00:36:29,940 --> 00:36:36,860 So I think and philosophically and epistemologically, I was very concentrated on the broad world outside, 358 00:36:36,860 --> 00:36:42,810 you know, who they think you are and how you reflect on your identity, the purpose of your research and so on. 359 00:36:42,810 --> 00:36:48,140 But then actually, you know, thinking about the interview doesn't matter in a sense that much. 360 00:36:48,140 --> 00:36:58,790 But then actually doing this level of work about your interview technique is hugely important and I think can be very revealing. 361 00:36:58,790 --> 00:37:04,670 Do you feel the same as your interview technique? How has your technique? 362 00:37:04,670 --> 00:37:08,000 Because I'm sure it would have done. Oh, it absolutely has done. 363 00:37:08,000 --> 00:37:09,350 Well, it hasn't. It hasn't. 364 00:37:09,350 --> 00:37:17,420 And in some senses and I think the well, two things I'll tell you a little bit about how it hasn't hasn't changed in the second. 365 00:37:17,420 --> 00:37:23,540 But the sort of the difference between a conversation and an interview is the amount for me anyway, 366 00:37:23,540 --> 00:37:29,390 is the amount of reflection that you do afterwards and also the amount of planning you do in advance. 367 00:37:29,390 --> 00:37:33,170 And I think that that's something that can be quite a surprise to people who 368 00:37:33,170 --> 00:37:37,370 are new to this or people who don't really understand qualitative research, 369 00:37:37,370 --> 00:37:42,410 because it's not just a chart, is it? You know, it's something much more than that. 370 00:37:42,410 --> 00:37:49,190 But I think there's a level of expertise that you gain over the years in terms of doing what we call semi structured interviews. 371 00:37:49,190 --> 00:37:54,290 So these things that you do quite heavily plan in advance. 372 00:37:54,290 --> 00:37:59,270 But the idea is that the participant takes the lead and gives their version of events. 373 00:37:59,270 --> 00:38:03,320 And you may not ask the questions you have predefined in advance. 374 00:38:03,320 --> 00:38:08,300 And I think that that sort of thing where you put a lot of effort into planning and reflecting 375 00:38:08,300 --> 00:38:14,210 on your interview is really critical in terms of how you learn to do qualitative research. 376 00:38:14,210 --> 00:38:17,900 So one of those things is about being a good reflective learner and being reflexive 377 00:38:17,900 --> 00:38:21,770 about the impact you have on your research and your research participants. 378 00:38:21,770 --> 00:38:29,930 But, yes, I told you briefly earlier about the very first set of interviews I did, which was absolutely embarrassing, Laura. 379 00:38:29,930 --> 00:38:35,660 It was just horrendous thinking back on it. But it was quite a structured approach. 380 00:38:35,660 --> 00:38:43,280 And there was a prompt that I used after each question was, and is there anything else you'd like to tell me about that? 381 00:38:43,280 --> 00:38:46,820 And I kept asking this after each question because I really wanted to make sure 382 00:38:46,820 --> 00:38:51,140 that the participants really did tell me everything about what they wanted to. 383 00:38:51,140 --> 00:38:58,610 And I didn't know how else to do it. And it became very sort of repetitive and formulaic and felt uncomfortable. 384 00:38:58,610 --> 00:39:00,740 As you know, for me as a researcher, 385 00:39:00,740 --> 00:39:06,950 I don't know how the participants felt about it because they didn't dare ask them in case they told me I was doing a terrible job, 386 00:39:06,950 --> 00:39:14,870 you know, but that taught me so much. So when I came to do my PhD interviews and in every interview that I've done since, 387 00:39:14,870 --> 00:39:20,510 that echoes around in my head about how uncomfortable I felt with not sort of 388 00:39:20,510 --> 00:39:26,840 thoughtfully thinking about the questions and also not really listening properly. 389 00:39:26,840 --> 00:39:31,880 I mean, I was listening and I was trying to ask questions based on what they told me. 390 00:39:31,880 --> 00:39:36,890 But the whole time I was thinking, I really need to get everything from them that I can handle this prompt of. 391 00:39:36,890 --> 00:39:42,290 Is there anything else you'd like to tell me? You know, and any time in an interview where I've said the words. 392 00:39:42,290 --> 00:39:44,150 Is there anything else you'd like to tell me? 393 00:39:44,150 --> 00:39:50,150 I should have been thinking about the time when I used it, you know, sort of forty times in one interview. 394 00:39:50,150 --> 00:40:01,490 But I think, you know, it's it's it has changed. In terms of what I feel confident about asking as well, so in some of the projects that I was doing, 395 00:40:01,490 --> 00:40:06,950 like I did a project with people with life changing injuries and that included people who had brain injury, 396 00:40:06,950 --> 00:40:10,820 spinal injuries, limb loss burns, pain conditions. 397 00:40:10,820 --> 00:40:17,210 You know, there was a whole gamut of things there. And I remember thinking when I was doing that project that I felt very uncomfortable 398 00:40:17,210 --> 00:40:21,860 about asking people about some of the things that were no regular part of their lives. 399 00:40:21,860 --> 00:40:28,800 And it took some reflection and some practise to be able to say these are things that are important to these people. 400 00:40:28,800 --> 00:40:35,480 I'm the vessel through which they share them. It's not about me, you know, but that was something I had to learn. 401 00:40:35,480 --> 00:40:42,570 You know, I find that really hard. It's not being about me. Still, I have a lesson I have to learn. 402 00:40:42,570 --> 00:40:48,410 I think you're exactly right. And I think you can get a very practised in a particular area. 403 00:40:48,410 --> 00:40:53,960 So the McCain interview seems sort of naturalistic is a skill. 404 00:40:53,960 --> 00:40:57,740 So at first, when you're learning how to do something, remembering all the different areas, 405 00:40:57,740 --> 00:41:00,680 especially if you're doing so semi structured interviews and you have to cover 406 00:41:00,680 --> 00:41:06,050 particular areas or questions and but making it seem like a conversation can be very, 407 00:41:06,050 --> 00:41:11,070 very difficult. But then I think you can get very comfortable with an area. 408 00:41:11,070 --> 00:41:14,930 So I was quite comfortable, for example, with doing interviews about mental health. 409 00:41:14,930 --> 00:41:18,050 And then I went to do some interviews about smoking cessation. 410 00:41:18,050 --> 00:41:23,210 And rather arrogantly, I assume these will be very different, quite short interviews compared to, 411 00:41:23,210 --> 00:41:29,240 you know, some of these experiences of childhood trauma and, you know, psychosis and so on. 412 00:41:29,240 --> 00:41:36,290 But actually, it was took me such an important lesson, I think, in terms of with qualitative research, 413 00:41:36,290 --> 00:41:40,130 you don't ever just nail down the subject to the subject only. 414 00:41:40,130 --> 00:41:46,310 So people, of course, have stopped smoking in various different situations in their lives. 415 00:41:46,310 --> 00:41:49,220 Some people had stopped smoking when they'd become a father, 416 00:41:49,220 --> 00:41:58,130 and that related it very strongly to that another person had stopped smoking because a close relative had died of lung cancer and and so on. 417 00:41:58,130 --> 00:42:02,430 And other people's smoking journeys have been connected entirely to their mental health. 418 00:42:02,430 --> 00:42:09,470 So it was both the media narratives in some sense. I think it was a lesson I should have known before that I thought I was going 419 00:42:09,470 --> 00:42:13,460 to be talking about nicotine replacement and smoking cessation services or, 420 00:42:13,460 --> 00:42:24,590 you know, Alan Complexo, the rest of it that Tim and then I actually most Colusa interviews can't be contained in that in that neat sentence. 421 00:42:24,590 --> 00:42:29,160 So they are they are messy. And you might think you're going to get one piece of information. 422 00:42:29,160 --> 00:42:33,440 You come up with a distinctly different set of information. Yeah. 423 00:42:33,440 --> 00:42:35,000 Oh, that's such an interesting point. 424 00:42:35,000 --> 00:42:42,560 And it's one of the things I think that outsiders criticise qualitative research for or maybe novice interviewers worry about, 425 00:42:42,560 --> 00:42:45,350 which is that people will go off on tangents. 426 00:42:45,350 --> 00:42:52,010 And I worry sometimes that people think tangents or people think that things that are tangents aren't actually 427 00:42:52,010 --> 00:42:58,910 tangents and that they'll miss the sort of really rich quality data if they try and steer people away from that. 428 00:42:58,910 --> 00:43:09,960 What are your thoughts on that? I think that's it's an illusion to suggest that there are tangents and that there isn't complexity in the first place. 429 00:43:09,960 --> 00:43:17,450 So any methodology you take to a complex is a public health problem, is going to produce anomalies, 430 00:43:17,450 --> 00:43:26,210 complex patterns and so on, and have a problem with data saying, for example, take the recent example about vaccine uptake. 431 00:43:26,210 --> 00:43:26,570 Now, 432 00:43:26,570 --> 00:43:37,910 trying to understand why vaccine uptake is different in people with different ethnicity is a really complicated question and exactly how you frame it. 433 00:43:37,910 --> 00:43:46,220 So framing it as vaccine uptake rather than the vaccine availability is obviously going to be different. 434 00:43:46,220 --> 00:43:58,430 It's going to take how you define ethnicity in a CPRS UK population where migrants come from over 160 different population countries. 435 00:43:58,430 --> 00:44:09,740 It's going to say, you know, how you talk about and experiences and attitudes and so on and some of the practical difficulties about it. 436 00:44:09,740 --> 00:44:14,870 Going right back to what I said about the beginning, understand the everything through the lens of culture. 437 00:44:14,870 --> 00:44:18,830 It might be about buses, you know, those sorts of things. 438 00:44:18,830 --> 00:44:27,140 So reality is complicated by the practical and, you know, and much more sort of theoretical approaches to a problem. 439 00:44:27,140 --> 00:44:36,020 So I think that any approach that gets annoyed by the complexity is actually just trying to sort of force the boxes up. 440 00:44:36,020 --> 00:44:45,320 But then I think qualitative researchers have the responsibility to distil to some extent the information that they're getting. 441 00:44:45,320 --> 00:44:53,510 So, you know, thematic analyse what they don't just leave it as sort of descriptive, messy reality to really address the. 442 00:44:53,510 --> 00:45:02,390 What question and the so what question, I think varies wildly between, say, what in terms of how do we get this to publishable article, 443 00:45:02,390 --> 00:45:08,480 you know, what are the interesting things that will be interesting both to that particular journal, in that particular format, etc.? 444 00:45:08,480 --> 00:45:14,060 Or if you're looking in a public health environment, that might be a very interesting piece of information. 445 00:45:14,060 --> 00:45:21,050 What's in our gift to change about it? If there's nothing in life to change about it, then why are we doing this research? 446 00:45:21,050 --> 00:45:30,290 And that that is the more interesting question to me. Not really go off on a tangent, but if you do go off on a tangent, can we do anything about it? 447 00:45:30,290 --> 00:45:32,720 Yeah. Oh, that's a fair point. 448 00:45:32,720 --> 00:45:42,920 And and you also raise the knotty issue of analysis and causative analysis, which I want to quickly talk about as well, Laura. 449 00:45:42,920 --> 00:45:48,170 And qualitative research produces a huge amount of data, 450 00:45:48,170 --> 00:45:55,790 and it can be overwhelming count when you start with the sheer amount of words you have to deal with and understand. 451 00:45:55,790 --> 00:46:04,580 Never mind trying to make sense of or produce into a palatable framework that know a journal will accept or that 452 00:46:04,580 --> 00:46:11,270 other health researchers or clinicians will accept as an appropriate way of looking at this particular problem. 453 00:46:11,270 --> 00:46:23,680 And have you any thoughts on approaching analysis for novices or how how can we make this easier for students when they tackle it for the first time? 454 00:46:23,680 --> 00:46:31,000 I think be aware this isn't in a negative sense at all, but be aware of the limitations of everything, 455 00:46:31,000 --> 00:46:35,890 I think the fact that you get lots and lots of words and interview data, 456 00:46:35,890 --> 00:46:41,890 but be very aware of where that has come from in the first place, that this is a partial you know, 457 00:46:41,890 --> 00:46:47,830 it's a really a tiny amount of the words anybody ever says about their experiences that Spain's liberty may be focussed on. 458 00:46:47,830 --> 00:46:51,070 Very interesting, but it's a limited version. 459 00:46:51,070 --> 00:46:59,800 And then so I think I do sometimes get the impression that you have this sort of secret data that you therefore have to disentangle and so on. 460 00:46:59,800 --> 00:47:06,040 Gissing, you have a story of something. Let's try and make some sense through that. 461 00:47:06,040 --> 00:47:11,320 And then I think particularly if he, in some interviews are very focussed. 462 00:47:11,320 --> 00:47:17,830 For example, if you go along, say, some of these care pathway and want to ask you about their discharge or something like that, 463 00:47:17,830 --> 00:47:21,220 then I think it makes sense to jump it up into small chunks. 464 00:47:21,220 --> 00:47:26,980 If you if you're doing a very sort of focussed and predictable and sort of set of research interviews, 465 00:47:26,980 --> 00:47:33,490 I think if you do narrative interviews which are messy and go to places that you didn't intend and so on, 466 00:47:33,490 --> 00:47:41,380 I think I always find it useful to use very, very broad categories so that you keep the integrity of the narrative. 467 00:47:41,380 --> 00:47:47,590 But you can see where it fits in terms of somebody's story and that you don't make too much work for yourself, 468 00:47:47,590 --> 00:47:55,480 because I can remember sort of setting off and sort of, you know, 10 KADES And then I think it was 120 some cases at once. 469 00:47:55,480 --> 00:48:00,940 It's because I was so interested in keeping sort of the integrity of, you know, framing that code, 470 00:48:00,940 --> 00:48:07,690 representing exactly what the participant had said and not merging into somebody else's category and so on. 471 00:48:07,690 --> 00:48:12,610 But I think that I not only created a huge amount of work for myself, 472 00:48:12,610 --> 00:48:21,340 but also I missed the point sometimes because I missed this a the sequential part of the interview. 473 00:48:21,340 --> 00:48:31,720 So I divided up too much. So, for example, I was asking about narrative and nicotine replacement therapy and they gave me an example of it helped. 474 00:48:31,720 --> 00:48:35,860 And then they thought for a minute and said what actually helped was et cetera, et cetera. 475 00:48:35,860 --> 00:48:42,220 But I had coded nicotine replacement therapy and left the next bit, which wasn't actually about it. 476 00:48:42,220 --> 00:48:45,760 But but that obviously reflected on the bit that they just said. 477 00:48:45,760 --> 00:48:54,430 So if I cut up my data too much, I'd have missed that sequence, that the proposal, which is essentially a narrative form. 478 00:48:54,430 --> 00:48:58,390 This happened because of this. Because of this. This followed this. This followed this. 479 00:48:58,390 --> 00:49:08,080 And that's sometimes what you miss out. I think if you go into too much detail, into thematic analysis, it's a very good point. 480 00:49:08,080 --> 00:49:15,130 And, you know, I think that for me, the lesson that I've learnt is just about getting started because, 481 00:49:15,130 --> 00:49:18,910 you know, it's it's a campaign really overwhelming, 482 00:49:18,910 --> 00:49:26,320 and especially when you've got multiple interviews echoing in your head and just sitting down and getting started with it is very, very helpful. 483 00:49:26,320 --> 00:49:34,570 And I think I might, in my experience, mirror some of your experiences in that when I was doing phenomenological research, 484 00:49:34,570 --> 00:49:38,230 a lot of it is individually focussed. Well, it's all individually focussed. 485 00:49:38,230 --> 00:49:45,760 So the complexity there and the messiness was trying to get at the kind of richness of each individual 486 00:49:45,760 --> 00:49:52,210 experience while still being able to make sort of sort of some claims about the group itself. 487 00:49:52,210 --> 00:49:54,820 So all of these people together, what is this like for them? 488 00:49:54,820 --> 00:50:01,930 And then thinking about this on an individual level and on a case by case basis, which is really, really tricky to, you know, 489 00:50:01,930 --> 00:50:09,940 because you're trying to retain that sense of individuality, which is often what we do in most types of qualitative research anyway. 490 00:50:09,940 --> 00:50:19,060 But I think that it's one of the things that I think people find hardest when they start is to kind of retain the sense of individuality, 491 00:50:19,060 --> 00:50:23,410 but also think about the the group level stuff. 492 00:50:23,410 --> 00:50:33,070 But I think, you know what what's apparent in this conversation, Laura, is that qualitative research is messy, isn't it? 493 00:50:33,070 --> 00:50:41,020 I'm very curious. Yeah, no, I'm just going to say the other thing that's I think is important for qualitative researchers 494 00:50:41,020 --> 00:50:48,190 is to be able to sit with uncertainty and to know that at the end of your research, 495 00:50:48,190 --> 00:50:59,140 you're producing an answer or a set of answers, but you're not necessarily producing the answer because there is no the answer in existence. 496 00:50:59,140 --> 00:51:09,310 And I think that's that's exactly true. And I think and you receive a partial version of the world, but you would do this to any research methodology. 497 00:51:09,310 --> 00:51:16,040 So, you know, estimates about infection rates in the country aren't accurate surveyors. 498 00:51:16,040 --> 00:51:21,640 You know, nobody has given these tests. Everybody in the country at the same point. 499 00:51:21,640 --> 00:51:23,260 You know, we're all describing a. 500 00:51:23,260 --> 00:51:31,930 Partial version of reality, but the methodology, the SS and I think the importance in qualitative research is to be able to look up. 501 00:51:31,930 --> 00:51:38,820 So the the story I think I'll probably end on is thinking about your interviews as sort of sarcasms. 502 00:51:38,820 --> 00:51:44,910 But I made the mistake of my record recorder not working one time when I interviewed somebody. 503 00:51:44,910 --> 00:51:50,460 And this is absolute disaster and I apologise profusely to the participants and so on. 504 00:51:50,460 --> 00:51:53,910 And they extremely kindly said, would you like to come and do it again? 505 00:51:53,910 --> 00:52:01,560 At which point I sat and they gave me an entirely different version of events to the version of events I'd receive the first time round. 506 00:52:01,560 --> 00:52:07,470 And none of these contradicted each other. They were just in narrative form, but in a different way, 507 00:52:07,470 --> 00:52:13,140 so that the second interview was a much more sort of negative version of events than that presented in the first one. 508 00:52:13,140 --> 00:52:18,030 And I've never known whether or not feeling so well that day. 509 00:52:18,030 --> 00:52:21,930 Was it because they knew me a bit better? You know, why was that? 510 00:52:21,930 --> 00:52:28,830 But had I just had the first interview, the first experience, I would have gone off and analysed it and put it into it and Vevo and then my, 511 00:52:28,830 --> 00:52:35,010 you know, and come up with an entirely different version than I would have done had I had this second interview. 512 00:52:35,010 --> 00:52:36,750 And that's the same for ethnography. 513 00:52:36,750 --> 00:52:42,340 I think you can learn things right at the end of your ethnographic research, which turns everything on its head a little bit. 514 00:52:42,340 --> 00:52:51,060 So I think whatever you're doing, whatever methodology you choose, has its messiness, has its incompleteness. 515 00:52:51,060 --> 00:52:57,750 And I think we often reflect on that as qualitative research as well. I think that's that's one thing that's really quite universal. 516 00:52:57,750 --> 00:53:00,120 Yeah, you're absolutely right. 517 00:53:00,120 --> 00:53:12,900 And I think I would end this conversation by saying that messiness is beautiful and it's wonderful to work in this type of messiness and to feel 518 00:53:12,900 --> 00:53:22,620 comfortable with it and to know that what you're doing is exploring complexity and not trying to sanitise things or narrow it down too much. 519 00:53:22,620 --> 00:53:31,110 I don't know if you'd agree with that. I think most especially and I think even if you if, for example, 520 00:53:31,110 --> 00:53:37,050 I'm doing a series of interviews with my father at the moment about his life history and I'm learning all sorts of things. 521 00:53:37,050 --> 00:53:47,070 And this is somebody you know, I am participant observation for 40 years now with my father, but I'm learning lots and lots of things about him. 522 00:53:47,070 --> 00:53:53,280 So I think there are many, many sides to people and phenomena that we think we know quite well. 523 00:53:53,280 --> 00:54:02,160 So it's a deliberate line of enquiry that therefore I'm learning about some of the hugely more than I would have done otherwise had I not. 524 00:54:02,160 --> 00:54:04,470 And then the series of interviews. 525 00:54:04,470 --> 00:54:16,020 So I think and again, it's a deliberate form of enquiry which can and more messiness, you know, as you say, a beautiful messiness. 526 00:54:16,020 --> 00:54:24,840 But it's a very helpful methodology for doing that. Yeah, that sounds fascinating what you're doing with your dad, and I wish you the best with it. 527 00:54:24,840 --> 00:54:31,470 And you and I have known each other for quite a long time. We've had many, many conversations about this very issue, about the messy realities. 528 00:54:31,470 --> 00:54:36,090 Of course, he did research, but I think I've learnt a lot today from talking to you. 529 00:54:36,090 --> 00:54:39,360 So thank you very much for your contribution. Thank you. 530 00:54:39,360 --> 00:54:41,798 Likewise. It's been a pleasure.