1 00:00:00,540 --> 00:00:04,440 This is bioethics bytes with me, David Edmonds and me Nigel Warburton. 2 00:00:04,710 --> 00:00:12,180 Bioethics Bytes is made in association with Vox, which we here are Centre for Practical Ethics and made possible by a grant from the Wellcome Trust. 3 00:00:12,480 --> 00:00:22,650 For more information about Bioethics bytes, go to WW W Doctor Practical Ethics, Dot Oaks Dot AC dot UK or to iTunes u. 4 00:00:22,980 --> 00:00:27,570 Every day people die in hospitals because there aren't enough organs available for transplant. 5 00:00:28,230 --> 00:00:31,890 In most countries of the world, though not all, it's illegal to sell organs. 6 00:00:32,430 --> 00:00:36,390 Governments insist that the motive for donating organs has to be altruistic. 7 00:00:36,690 --> 00:00:43,020 It can't be financial reward. The idea of being able to sell body parts makes many people uneasy. 8 00:00:43,770 --> 00:00:50,130 But is it time for policy change? Should we be permitted to flog one of our organs on eBay, say, for $10,000? 9 00:00:50,520 --> 00:00:57,480 If not, why not? Tim Lewin's is a Cambridge philosopher and a member of the Nuffield Council on Bioethics. 10 00:00:58,170 --> 00:01:01,590 Tim Lawrence, welcome to Bioethics Points. It's very nice to be here. 11 00:01:01,590 --> 00:01:06,480 Thank you. The topic we're going to focus on is the donation of body parts. 12 00:01:06,750 --> 00:01:11,640 Could you say something about the kinds of body parts and the kinds of transactions that occur? 13 00:01:12,300 --> 00:01:15,300 Well, the ethical issues around donation are very pressing. 14 00:01:15,300 --> 00:01:19,300 And one of the reasons is that they're obviously essential for health and functioning. 15 00:01:19,320 --> 00:01:26,790 It's estimated that even in the UK alone, three people die every day because they're waiting for organs for transplantation. 16 00:01:27,030 --> 00:01:30,420 So there's a very strong sense that this is something that we need to do something about. 17 00:01:30,690 --> 00:01:34,710 It's a very urgent problem and we need to increase the rate of donation. 18 00:01:35,130 --> 00:01:40,290 At the same time, one can then look at the question of what sorts of incentives are appropriate here. 19 00:01:40,350 --> 00:01:50,249 In general, most international organisations, the World Health Organisation, for example, takes it as a given that donation needs to be altruistic. 20 00:01:50,250 --> 00:01:56,880 And that's particularly when one's talking about the donation of organs, things like kidneys, for example. 21 00:01:57,000 --> 00:02:00,750 So that raises a bunch of ethical questions about why is altruism so important, 22 00:02:01,050 --> 00:02:06,840 whether there are other kinds of incentives that one could use, which are consistent with altruism, those kinds of things. 23 00:02:07,530 --> 00:02:15,630 Just to get clear what sort of organs and tissues we talk about, well, I guess the obvious examples of things like kidneys but also blood is donated. 24 00:02:15,900 --> 00:02:21,270 There are other things which don't just contribute towards one's own health, but they also bring future generations into existence. 25 00:02:21,270 --> 00:02:24,720 So we're also talking about gametes, for example, sperm and eggs. 26 00:02:24,780 --> 00:02:28,410 Most obviously, we can sell our labour. 27 00:02:28,800 --> 00:02:34,410 Our bodies seem to be our own. Why can't we sell our body parts, particularly if we can function very effectively without them? 28 00:02:34,770 --> 00:02:40,739 I think that's a very good question and it's not easy to answer. So some responses that are given look, for example, 29 00:02:40,740 --> 00:02:47,490 towards the alleged quality of supply of materials that you get if you're basing it on altruistic donation. 30 00:02:47,880 --> 00:02:52,080 The argument here, roughly speaking, goes. Suppose you moved away from altruism. 31 00:02:52,080 --> 00:02:57,690 Suppose instead you offered people financial incentives for donating their blood or for donating their kidneys. 32 00:02:57,870 --> 00:03:05,940 Well, then what would happen? The answer, people say, is that poor people, disadvantaged people, would tend to come forward. 33 00:03:06,090 --> 00:03:12,389 And then the worry just is that their organs just wouldn't be as good. They'd be deceased, maybe because of lifestyle issues. 34 00:03:12,390 --> 00:03:16,860 Maybe these people are engaging in all kinds of other dodgy activities, which means that we wouldn't want their blood. 35 00:03:17,100 --> 00:03:21,150 So one set of reasons is just to do with the quality of supply. 36 00:03:21,390 --> 00:03:25,830 And that's, I think, pretty implausible right now in any kind of donation system, 37 00:03:25,830 --> 00:03:32,100 needs extremely rigorous testing and screening procedures, and we could just carry on using those. 38 00:03:32,110 --> 00:03:38,190 So I think those quality arguments don't really stand up. Is that the only argument against taking money for body parts? 39 00:03:38,610 --> 00:03:42,749 There's also a set of arguments that relate to the quantity of supply as well. 40 00:03:42,750 --> 00:03:49,920 And again, these are not deep, principled arguments. The worry relating to quantity of supply goes like this. 41 00:03:50,100 --> 00:03:55,740 Roughly speaking, we currently have an altruistic scheme. Suppose we were to move over to a paid scheme? 42 00:03:55,950 --> 00:04:01,020 Well, maybe some people who really need the money would then donate for remuneration. 43 00:04:01,290 --> 00:04:05,579 But then the thought goes are the people who currently donate tonnes of the altruistic 44 00:04:05,580 --> 00:04:10,680 scheme would feel as though this had been reduced to a mere market transaction. 45 00:04:10,680 --> 00:04:16,169 It was then somebody else's job to do this and they would withdraw their participation. 46 00:04:16,170 --> 00:04:24,690 So some people have claimed, somewhat paradoxically, that the overall rate of donation would actually go down even with this incentivization scheme. 47 00:04:24,930 --> 00:04:28,379 Once again, I think this is a case where the empirical evidence is is fairly flimsy. 48 00:04:28,380 --> 00:04:39,360 So there is one country in the world where a state endorsed, regulated system of organ donation is currently at work and that country is Iran. 49 00:04:39,660 --> 00:04:47,880 Now, there has been some suggestion that although since the scheme has been introduced, certain level of donation has increased. 50 00:04:48,030 --> 00:04:53,040 It looks as though previously altruistic donation has has tailed off there. 51 00:04:53,280 --> 00:04:59,760 But of course it's very, very hard to really extrapolate here some instances which try to show what people would. 52 00:04:59,890 --> 00:05:05,650 Who were you to offer them some incentives based merely on asking them hypothetical questions. 53 00:05:05,920 --> 00:05:13,570 Those hypotheticals suggest that maybe they would indeed be offended by the offer of reward and remove their participation. 54 00:05:13,810 --> 00:05:18,910 But when you look at other countries where people have genuinely been offered small rewards, for example, 55 00:05:18,910 --> 00:05:23,920 for giving blood, it doesn't look as though those rewards actually make any difference to their behaviour in practice. 56 00:05:24,700 --> 00:05:32,710 So far we've just talked about practical arguments about the consequences or alleged consequences of setting up a market in body parts. 57 00:05:32,720 --> 00:05:35,840 But there are people who believe there's something special about the body. 58 00:05:35,860 --> 00:05:39,610 Yeah, that's right. Although it's difficult to really put one's finger on on that. 59 00:05:39,730 --> 00:05:47,920 So sometimes people, when asked why the body is special, will resort to talking about things like dignity in the body, for example. 60 00:05:48,160 --> 00:05:52,690 Well, one of the problems about talking about dignity is it is rather a nebulous concept. 61 00:05:52,690 --> 00:06:02,560 And people often use considerations of dignity to oppose actions that consenting adults are engaging in which they frankly don't like very much. 62 00:06:02,590 --> 00:06:06,390 There is, I think, something, general, that we can say about why we think body parts are important. 63 00:06:06,400 --> 00:06:11,740 And this is something that I think everybody should agree on, and that is simply that health is very important. 64 00:06:12,010 --> 00:06:16,360 So you need a properly functioning body if you want to do almost anything. 65 00:06:16,390 --> 00:06:20,110 It's not a capacity that contributes towards you being able to do just one or two things. 66 00:06:20,110 --> 00:06:25,060 If you're healthy, you can do a very large range of things that you might wish to do. 67 00:06:25,360 --> 00:06:32,770 Being healthy is a kind of precondition for more or less any reasonable life that you might wish to lead. 68 00:06:32,830 --> 00:06:38,590 So that, I think, explains why it is that we view a healthy body with such urgency. 69 00:06:39,190 --> 00:06:44,349 There is also a thought that because we view being healthy as such a general purpose, 70 00:06:44,350 --> 00:06:48,850 good, a kind of entry level good if you like to being able to function at all. 71 00:06:49,420 --> 00:06:53,829 That also explains why it is that we feel many people feel as though justice 72 00:06:53,830 --> 00:07:00,430 demands that everybody should be able to attain some basic state of health. 73 00:07:01,000 --> 00:07:03,070 The question is what that means then? 74 00:07:03,190 --> 00:07:11,290 For incentivisation, it's not clear that what that means is that incentivisation needs to be consistent with altruism. 75 00:07:11,440 --> 00:07:14,530 In fact, you might almost use that to argue in the opposite direction. 76 00:07:14,530 --> 00:07:19,780 So some people would say and what this shows is that health is so important that we should do 77 00:07:19,780 --> 00:07:24,609 more or less anything we can to make sure that everybody can maintain that state of health. 78 00:07:24,610 --> 00:07:27,639 And what that means is that we shouldn't be too prissy about the kinds of 79 00:07:27,640 --> 00:07:31,270 incentivization regimes that we use when we're trying to persuade people to donate. 80 00:07:31,840 --> 00:07:37,630 I think it's important to get clear about exactly what altruism means in this context. 81 00:07:38,230 --> 00:07:42,160 I mean, I think the way to think about altruistic action is in this context, 82 00:07:42,160 --> 00:07:48,340 we're mainly interested in motivation because presumably we're thinking about tourism as some kind of virtue. 83 00:07:48,550 --> 00:07:55,510 So it's something to be understood in terms of what makes people take the kinds of reasons which are prompting action. 84 00:07:55,870 --> 00:07:58,719 And I think we can just take altruistic action as action, 85 00:07:58,720 --> 00:08:07,120 which is motivated by a desire to promote the welfare of whoever is on the receiving end of the action. 86 00:08:07,750 --> 00:08:16,660 Looking specifically at donation issues, there are plenty of incentives which are perfectly compatible with altruism. 87 00:08:16,990 --> 00:08:26,440 Consider somebody who genuinely wants to give an organ to somebody else, and this is something which is happening in this country rather a lot. 88 00:08:26,440 --> 00:08:29,590 So called stranger donation in the context of kidneys. 89 00:08:29,920 --> 00:08:34,810 Consider somebody who genuinely wants to make a kidney available to someone else who needs it. 90 00:08:35,140 --> 00:08:42,070 Now that person might think. Unfortunately, I'd love to do it, but I can't because I can't afford to take the time off work. 91 00:08:42,580 --> 00:08:49,300 I need that money. I can't lose the money that I'd need to go through surgery and to recover afterwards. 92 00:08:49,660 --> 00:08:55,630 Now, suppose the government says, Well, I'll tell you what we'll do. We'll just compensate you for all of your lost earnings. 93 00:08:55,840 --> 00:09:04,300 Now, that's a financial incentive, but it's entirely compatible with altruism that the mere fact that you recoup what you lost its money, 94 00:09:04,480 --> 00:09:10,000 you receive it from the state, but it doesn't follow from that that your action was not altruistic. 95 00:09:10,120 --> 00:09:13,660 Wouldn't an exchange of passive money just lead to exploitation? 96 00:09:14,170 --> 00:09:20,680 Again, I think it's difficult to really make the exploitation argument work, but let me have my best shot at this. 97 00:09:20,680 --> 00:09:24,280 I think in some ways exploitation is a bit of a red herring here. 98 00:09:24,760 --> 00:09:27,820 If you think about exploitative labour, for example, 99 00:09:28,450 --> 00:09:38,890 usually what's meant by saying that employer is being exploitative is simply that the employer isn't paying his staff what the job is worth. 100 00:09:39,520 --> 00:09:46,720 Now, if the worry then was that payment for organ donation were exploitative, in that sense there'd be a very simple way to solve it, 101 00:09:46,750 --> 00:09:54,550 which would just be to pay people even more money for their organs in this imagined state regulated market. 102 00:09:54,910 --> 00:09:59,020 But that's not what people think would solve the problem. When people say this is exploitative, what they mean. 103 00:09:59,020 --> 00:10:03,260 Is that all? Winters are not the sorts of things that should be traded financially at all. 104 00:10:03,410 --> 00:10:09,979 And I think that I mean, roughly speaking, what's going on in the back of people's minds here is that they think that organs 105 00:10:09,980 --> 00:10:15,620 and with it what organs lead to which is health is being somehow mis mis valued. 106 00:10:16,010 --> 00:10:20,330 And the notion of mis evaluation you can make sense of when you look back to, say, 107 00:10:20,580 --> 00:10:25,220 the reports in the newspapers earlier on this year, last year, about paid friends. 108 00:10:25,250 --> 00:10:30,860 Right. So it turns out that you can hire people to be your friend for an evening or for a weekend. 109 00:10:30,890 --> 00:10:34,270 But it looks on reflection as though that's just not what friends are supposed to do. 110 00:10:34,280 --> 00:10:37,580 They're not just meant to be turning up because they're getting paid. 111 00:10:37,790 --> 00:10:42,200 They're not meant to be helping you out because they're being rewarded for it financially. 112 00:10:42,350 --> 00:10:46,790 They're meant to be helping you out because they really care about you. 113 00:10:47,690 --> 00:10:49,549 So one way, I suppose, 114 00:10:49,550 --> 00:10:57,470 of trying to justify why people even think it's important that donation should be altruistic is the thought that we want to live 115 00:10:57,470 --> 00:11:08,870 in the kind of society where efforts to improve the welfare of other people are not just reduced to yet another fee for services, 116 00:11:09,230 --> 00:11:17,870 but instead they're really meant to be expressive of a genuine desire to help out the broader health of the population. 117 00:11:18,080 --> 00:11:21,260 Some kind of solidarity stick notion that we're all in it together. 118 00:11:21,470 --> 00:11:25,220 Health is this kind of basic good and we should be looking out for each other. 119 00:11:25,400 --> 00:11:30,360 Something like that, I think, underlies the general thought that donation should be altruistic. 120 00:11:30,740 --> 00:11:35,660 And what do you think of that argument? I think it's the best effort to justify altruistic donation. 121 00:11:35,900 --> 00:11:43,870 Even then, I'm not sure that it works. I've been talking as though all donation of what you might think of as significant body parts is altruistic. 122 00:11:43,880 --> 00:11:53,720 In fact, it's not. One thing that happens in the UK in the context of a gamete donation is that we allow things called egg sharing schemes. 123 00:11:53,810 --> 00:11:59,720 If you are a woman with healthy eggs, but for some reason or another you need IVF treatment, 124 00:12:00,410 --> 00:12:06,560 then private fertility clinics will let you have IVF treatment, 125 00:12:06,800 --> 00:12:18,200 maybe at a greatly reduced price, or maybe for free if you are willing to donate some of those eggs to another woman who needs donated eggs. 126 00:12:18,680 --> 00:12:27,260 It seems to me that that sort of scheme is not primarily appealing to the altruistic motivation of the donor. 127 00:12:27,290 --> 00:12:29,630 Many women who enter into egg sharing schemes, 128 00:12:29,870 --> 00:12:36,810 they say that they wouldn't have done that had IVF been made available freely to them on the National Health Service. 129 00:12:36,830 --> 00:12:40,760 So in that sense, it looks as though this is a self-regarding action that they're doing. 130 00:12:41,120 --> 00:12:49,040 Now, having said that, it's not clear that there's anything particularly bad about egg sharing schemes, even though they're non altruistic. 131 00:12:49,310 --> 00:12:59,510 When you ask people who are donors involved in egg sharing schemes, they seem to genuinely care at least once they've entered into the scheme. 132 00:12:59,510 --> 00:13:04,230 They genuinely care about the welfare of mothers who are benefiting from their eggs. 133 00:13:04,400 --> 00:13:08,420 They want to know whether or not pregnancies have been successful. 134 00:13:08,420 --> 00:13:12,890 They seem to gain something from helping other people out. 135 00:13:13,430 --> 00:13:22,850 That suggests to me that we should be critical of the idea that merely by moving away from altruistic incentives, 136 00:13:23,480 --> 00:13:30,469 we're inevitably going to undermine this solid touristic fellow feeling kind of approach 137 00:13:30,470 --> 00:13:35,270 because it looks in the context of egg donation as though there's still plenty of solidarity, 138 00:13:35,270 --> 00:13:40,669 there's still plenty of fellow feeling these kind of benefits in kind schemes are maybe 139 00:13:40,670 --> 00:13:47,329 less likely to undermine solidarity than a scheme where you simply offer somebody payment, 140 00:13:47,330 --> 00:13:49,940 because then it does look a lot more like fee for service. 141 00:13:50,210 --> 00:13:56,840 It's much less clear that this generally important empathy when it comes to the health and health needs of others will be placed in the foot, 142 00:13:56,840 --> 00:13:57,620 in the forefront. 143 00:13:57,920 --> 00:14:07,249 Potentially, there's a problem if we're bad at calculating the consequences for our own health of certain sorts of actions, say on average, 144 00:14:07,250 --> 00:14:12,680 people underestimate how important health is long term for their well-being and happiness, 145 00:14:13,040 --> 00:14:20,210 and yet overestimates what they'll be able to do with the money that they get from sacrificing some future healthiness. 146 00:14:20,720 --> 00:14:31,560 If that's true, any incentives where the encouragement of people to take actions which effectively harm their future health seem almost immoral. 147 00:14:31,580 --> 00:14:39,899 I mean, why would a government or a health organisation want to set up a pattern of behaviour which is actually going to encourage nudges, 148 00:14:39,900 --> 00:14:43,730 as it were, people into donations which will damage the health? 149 00:14:44,060 --> 00:14:49,430 Yeah, I think that's a good point. There's also some some empirical evidence that bears that out from the experience in Iran. 150 00:14:49,430 --> 00:14:55,580 So I mentioned Iran at the moment as a state endorsed scheme for the purchase of organs such as kidneys. 151 00:14:55,850 --> 00:14:59,300 It looks as though people who have sold organs, usually because. 152 00:14:59,780 --> 00:15:05,780 Debt later on come to regret it. They don't manage to clear their debts any way. 153 00:15:06,050 --> 00:15:11,390 They may become depressed. They have domestic dispute write down of marriage. 154 00:15:11,600 --> 00:15:18,620 So some studies really portray the Iranian experience very negatively, even though it's entirely legal. 155 00:15:18,680 --> 00:15:23,120 Now, you might say you don't think there was anything wrong with that if you were a paternalistic, 156 00:15:23,210 --> 00:15:27,920 because of course, there's no coercion involved here. Nobody's forcing these people to sell their kidneys. 157 00:15:28,250 --> 00:15:31,540 The way into the question was a good one, I think. 158 00:15:31,550 --> 00:15:34,370 So you said why would the government want to facilitate this? 159 00:15:34,700 --> 00:15:40,670 It's one thing to say that we shouldn't stop consenting adults from engaging in behaviours that don't harm others. 160 00:15:40,820 --> 00:15:45,680 It's another thing to say that the government should go around actually facilitating and encouraging these kinds of behaviours. 161 00:15:45,860 --> 00:15:49,160 You might say, well, the Government shouldn't prevent people from committing suicide. 162 00:15:49,400 --> 00:15:50,990 It's another thing altogether to say, well, 163 00:15:50,990 --> 00:15:57,530 why shouldn't the government just produce nicely packaged cyanide pills that people can take very easily to help them kill themselves? 164 00:15:58,070 --> 00:16:02,630 So where do you stand on this issue? What do you think about the use of incentives? 165 00:16:03,380 --> 00:16:13,970 I'm not convinced by any of the in principle arguments that try to show that nothing but an altruistic donation scheme could possibly work here. 166 00:16:14,270 --> 00:16:21,830 So, for example, I mentioned these worries about Iran. It's not clear that the Iranian experience can be generalised outside of that country. 167 00:16:22,040 --> 00:16:30,320 When stigma and shame are attached to the donation of organs for money, then this is likely to have terrible knock on problems. 168 00:16:30,500 --> 00:16:33,590 But it's not a necessary truth that stigma and shame are attached to these things. 169 00:16:33,590 --> 00:16:43,430 And in fact, we can imagine a possible society where it's regarded as a very noble thing to go and give your organs, 170 00:16:43,430 --> 00:16:47,300 even though there's a sizeable financial incentive attached to it. 171 00:16:47,480 --> 00:16:51,860 You can imagine cases where there really may be nothing wrong with this. 172 00:16:52,100 --> 00:16:56,990 However, my view is that it's not the time to institute such a thing. 173 00:16:57,260 --> 00:17:00,470 And that's because in going back to the problem that we started off with. 174 00:17:00,500 --> 00:17:03,350 Organ donation is indeed an urgent problem. 175 00:17:03,650 --> 00:17:10,160 But there are a number of other things that we can do to augment organ donation, some of which are very, very practical, 176 00:17:10,340 --> 00:17:18,499 proper counselling, seeking consent, making sure that there's effective transfer of organs from one centre to another. 177 00:17:18,500 --> 00:17:28,460 Those kinds of sort of nuts and bolts, infrastructural issues may help considerably and for many kinds of donation, 178 00:17:28,580 --> 00:17:34,910 there really isn't too much of a problem at the moment. So blood is not in particularly short supply. 179 00:17:35,120 --> 00:17:41,240 Many organs are, but there are other kinds of tissue that are not in particularly short supply either. 180 00:17:41,600 --> 00:17:49,790 Given worries that there might be similar stigma and shame issues, for example, in the UK, 181 00:17:49,970 --> 00:17:59,660 given worries that financial incentivisation could won't necessarily but could undermine a general solidarity commitment that we have. 182 00:17:59,870 --> 00:18:05,090 We shouldn't mess around with that system in those respects. We should mess around with the system in other respects, it seems to me. 183 00:18:05,840 --> 00:18:08,270 Tim Lewis, thank you very much. It's been a pleasure. 184 00:18:08,510 --> 00:18:17,030 For more information about bioethics bytes, go to WW dot practical ethics, dot oecs dot AC dot UK or iTunes U.